Methodology for Evaluating Experience of Mobile (Healthcare) Applications Used in Different Contexts of Daily Life

Abstract:

Many attendees at IEEE HealthCom conferences deal on a growing scale with development and evaluation of the mobile applications and services, and they will agree that a rigorous methodological approach towards a user experience "in the wild" is missing. In this course the attendees will learn a design and execution of empirical experiments to evaluate experience of mobile applications used in different contexts of daily life, as opposite to (theoretical) application's simulation or modeling. The methodology is based on a mixed methods approach: qualitative and quantitative methods. This course firstly presents a generic methodology for measurements-based performance evaluation of a mobile communication system and its service(s), and for evaluation of user experience, and second, it presents two case studies of application of this methodology. The performance evaluation aims at analysis of, for example, mobile system bottleneck or scalability characteristics, or at analysis of its application response time, as these metrics contribute to the overall experience of the mobile service use. The presented methodology has been derived from previous studies on performance of communication networks and QoE/QoS evaluation in a large-scale user studies using Experience Sampling Method and Day Reconstruction Methods. The methodology includes detailed steps for objectives determination, system instrumentation, and measurements execution and performance evaluation activities. The course illustrates use of the methodology for a performance evaluation of MobiHealth system and its vital sign tele-monitoring service provided to a mobile patient wearing a Wireless Body Area Network, and for entertainment, information and communication applications evaluated in a large-scale Android users study.

Short Bio:

Dr Katarzyna Wac is a senior computer scientist currently associated with Institute of Services Science at University of Geneva (Switzerland). In 2009-2010 she has visited the Human-Computer Interaction Institute at Carnegie Mellon University. In 2003 she has received a BSc and MSc degree in Computer Science from Wroclaw University of Technology (Poland), and in 2004 MSc in Telematics from University of Twente (the Netherlands). In 2009 she has defended her PhD thesis in Information Systems at University of Geneva. Her research focuses on measurements-based methodologies for an evaluation of performance of interactive mobile applications and its relation with the end-user perceived experience. She builds tools that predict application's performance and hence facilitate development of mobile computing applications that improve end-user perceived experience.

Health Care Collaborative Networked Organization

Abstract:

The major motivation of this course is to determine the essential features that must be considered in order to automate the Collaborative Networked Organization (CNO) construction. This course aims to provide (semi) automated support for dynamic adaptive intelligent virtual organizations thus by, utilizing CommonKADS knowledge modeling methodology for representing knowledge as a way to interchange knowledge between CNO partners.

Short Bio:

Morcous M. Yassa is an Egyptian researcher, Postgraduate diploma in computer science, from ISSR, Cairo University, Egypt in 1999. M.Sc in computer science, from ISSR, Cairo university, Egypt, in 2005. PhD in computer science from Faculty of Computers and Information, Cairo University (until now). Morcous has been published many research papers scientific journals and conferences. Morcous interests are Knowledge modeling, sharing and reuse, Intelligent information retrieval, Software Engineering, Service Oriented Architecture (SOA), Virtual Organizations, and Grid& Cloud Computing.

Opening Session

- Joel Rodrigues - IEEE Healthcom 2013, General Chair; Instituto de Telecomunicações, University of Beira Interior, Portugal
- Andrés Bas (Fundación Videomed, Spain, Director)
- Cleinaldo Costa - (State University of Amazonas, Brazil, Rector)
- José Ricardo (Associação para o Desenvolvimento da Telemedicina, Portugal, Chair)

- Henrique Martins (SPMS Portuguese Ministry of Health, President; University of Beira Interior, Portugal) - PDS-Live

- Claudio Peláez (Olivenza Health Center, Spain) - Telemedicine: A steeple race

Chair: Liliana Ferreira

Keynote Speakers:

Ana Nobre (Comforto em Casa, Portugal) Assistive Technologies for Home Care - Aim Quality of Life and the use of Service Design

Gabriela Postolache (Universidade Atlantica, Portugal) Applying smartphone apps to drive greater patient engagement and personalized physiotherapy

Methodology for Evaluating Experience of Mobile (Healthcare) Applications Used in Different Contexts of Daily Life

Abstract:

Many attendees at IEEE HealthCom conferences deal on a growing scale with development and evaluation of the mobile applications and services, and they will agree that a rigorous methodological approach towards a user experience "in the wild" is missing. In this course the attendees will learn a design and execution of empirical experiments to evaluate experience of mobile applications used in different contexts of daily life, as opposite to (theoretical) application's simulation or modeling. The methodology is based on a mixed methods approach: qualitative and quantitative methods. This course firstly presents a generic methodology for measurements-based performance evaluation of a mobile communication system and its service(s), and for evaluation of user experience, and second, it presents two case studies of application of this methodology. The performance evaluation aims at analysis of, for example, mobile system bottleneck or scalability characteristics, or at analysis of its application response time, as these metrics contribute to the overall experience of the mobile service use. The presented methodology has been derived from previous studies on performance of communication networks and QoE/QoS evaluation in a large-scale user studies using Experience Sampling Method and Day Reconstruction Methods. The methodology includes detailed steps for objectives determination, system instrumentation, and measurements execution and performance evaluation activities. The course illustrates use of the methodology for a performance evaluation of MobiHealth system and its vital sign tele-monitoring service provided to a mobile patient wearing a Wireless Body Area Network, and for entertainment, information and communication applications evaluated in a large-scale Android users study.

Short Bio:

Dr Katarzyna Wac is a senior computer scientist currently associated with Institute of Services Science at University of Geneva (Switzerland). In 2009-2010 she has visited the Human-Computer Interaction Institute at Carnegie Mellon University. In 2003 she has received a BSc and MSc degree in Computer Science from Wroclaw University of Technology (Poland), and in 2004 MSc in Telematics from University of Twente (the Netherlands). In 2009 she has defended her PhD thesis in Information Systems at University of Geneva. Her research focuses on measurements-based methodologies for an evaluation of performance of interactive mobile applications and its relation with the end-user perceived experience. She builds tools that predict application's performance and hence facilitate development of mobile computing applications that improve end-user perceived experience.

Health Care Collaborative Networked Organization

Abstract:

The major motivation of this course is to determine the essential features that must be considered in order to automate the Collaborative Networked Organization (CNO) construction. This course aims to provide (semi) automated support for dynamic adaptive intelligent virtual organizations thus by, utilizing CommonKADS knowledge modeling methodology for representing knowledge as a way to interchange knowledge between CNO partners.

Short Bio:

Morcous M. Yassa is an Egyptian researcher, Postgraduate diploma in computer science, from ISSR, Cairo University, Egypt in 1999. M.Sc in computer science, from ISSR, Cairo university, Egypt, in 2005. PhD in computer science from Faculty of Computers and Information, Cairo University (until now). Morcous has been published many research papers scientific journals and conferences. Morcous interests are Knowledge modeling, sharing and reuse, Intelligent information retrieval, Software Engineering, Service Oriented Architecture (SOA), Virtual Organizations, and Grid& Cloud Computing.

Panel New Trends On Telehealth / Telemedicine (I)

- Telepathology in Europe- Beyond efficiency Towards Innovation in Pathology
Marcial Garcia Rojo (Hospital Ciudad Real, Spain)

- Telegeriatrics from northern to southern Brazil
Euler Esteves Ribeiro (Manaus, Brazil)

- New perspectives on Telehealth/Telemedicine in Portugal
Luís Gonçalves (Telemedicine Working Group, Portuguese Ministry of Health, Portugal)

- The telemedicine conection - a reality on Madrid
Manuel Grandal (Hospital VPO, Madrid, Spain)

- Dermatological Triage by Telemedicine
Fernando Gomes da Costa (Cantanhede Health Center, Portugal)

AAL: The User's Perspective and Architectures

Session Chair: Henrique O'Neill

Health Technologies for assisting User's daily life

Session Chair: Filipe Sousa

Introduction to openEHR - Main Concepts, Tools and Archetype/Template Creation

Abstract:

The openEHR standard is an open specification that describes the management and storage, retrieval and exchange of health data in electronic health records. It aims to store all health data in a "one lifetime", vendor-independent, person-centred EHR. The openEHR specification is not concerned with the exchange of data between EHR-systems but mainly on how the information is stored. In this tutorial you will learn:
- The structure of the openEHR layers;
- How to create openEHR archetypes and templates using the available tools;
- And, the freely available APIs to use to automatically generate forms or web-services.

Target Audience: health informatics professionals that do not have experience with openEHR and aim to understand the fundaments of this standard. This tutorial is not intended to people that already have experience with openEHR.

Short Bio:

Ricardo Correia is computer scientist with a PhD in the integration of hospital Information Systems. He has a position as an Assistant Professor at the Health Information and Decision Sciences Department at the Faculty of Medicine of the University of Porto. He more than 50 indexed (Medline, Scopus or ISI) publications. He has been deeply involved in the implementation and the coordination of departmental electronic patient records (obstetrics, intensive care units, pneumology, and breast cancer), integrated hospital information systems and multi-centre web-based information systems for clinical research. He is currently deeply involved in the coordination of a Master Degree on Medical Informatics that is currently in its 8th edition. He has recently started the Portuguese group of openEHR that aims to promote this standard nationally.

Designing an Information Accountability Framework for eHealth

Abstract:

This tutorial is primarily based on the IEEE eHealth technical committee Newsletter published in March 2013. Its main focus is on information privacy management in eHealth through information accountability. The tutorial consists of three main aspects of a proposed information accountability framework for eHealth, namely, social aspects, technical aspects and legal aspects. Following a brief introduction of the problem domain and context, we present the tutorial in these three main components.

Short Bio:

Tony Sahama is a senior lecturer in the Information Security Discipline, Faculty of Science and Engineering. His research interest is in Health/Medical Informatics in particular, Healthcare Information Technology (HIT) and Clinical Decision Support Systems design and development. Tony holds a PhD in Computer Science (Computer Simulation and Modelling, DACE), Master of Education (Higher Education), M.Phil (Statistical Computation) and B.Sc. (specialised in Applied Statistics and Computer Programming). Tony has experience working with researchers in developing customised technological applications for Clinical Decision Support Systems, Data warehousing, Data Integration and IT applications for healthcare decision making processes. Currently, Tony is supervising 4 research masters and 4 PhD level projects in the Medical Informatics research area. Tony holds professional membership with ACM (SIGBioinforamtics), IEEE, IBS, ACS, SSAI and HISA.

Development and experiences on brazilian telehealth programme

Cleinaldo Costa (State University of Amazonas, Brazil, Rector)

Claúdio de Souza (State University of Minas Gerais, Belo Horizonte, Brazil)

Introduction to openEHR - Main Concepts, Tools and Archetype/Template Creation

Abstract:

The openEHR standard is an open specification that describes the management and storage, retrieval and exchange of health data in electronic health records. It aims to store all health data in a "one lifetime", vendor-independent, person-centred EHR. The openEHR specification is not concerned with the exchange of data between EHR-systems but mainly on how the information is stored. In this tutorial you will learn:
- The structure of the openEHR layers;
- How to create openEHR archetypes and templates using the available tools;
- And, the freely available APIs to use to automatically generate forms or web-services.

Target Audience: health informatics professionals that do not have experience with openEHR and aim to understand the fundaments of this standard. This tutorial is not intended to people that already have experience with openEHR.

Short Bio:

Ricardo Correia is computer scientist with a PhD in the integration of hospital Information Systems. He has a position as an Assistant Professor at the Health Information and Decision Sciences Department at the Faculty of Medicine of the University of Porto. He more than 50 indexed (Medline, Scopus or ISI) publications. He has been deeply involved in the implementation and the coordination of departmental electronic patient records (obstetrics, intensive care units, pneumology, and breast cancer), integrated hospital information systems and multi-centre web-based information systems for clinical research. He is currently deeply involved in the coordination of a Master Degree on Medical Informatics that is currently in its 8th edition. He has recently started the Portuguese group of openEHR that aims to promote this standard nationally.

Designing an Information Accountability Framework for eHealth

Abstract:

This tutorial is primarily based on the IEEE eHealth technical committee Newsletter published in March 2013. Its main focus is on information privacy management in eHealth through information accountability. The tutorial consists of three main aspects of a proposed information accountability framework for eHealth, namely, social aspects, technical aspects and legal aspects. Following a brief introduction of the problem domain and context, we present the tutorial in these three main components.

Short Bio:

Tony Sahama is a senior lecturer in the Information Security Discipline, Faculty of Science and Engineering. His research interest is in Health/Medical Informatics in particular, Healthcare Information Technology (HIT) and Clinical Decision Support Systems design and development. Tony holds a PhD in Computer Science (Computer Simulation and Modelling, DACE), Master of Education (Higher Education), M.Phil (Statistical Computation) and B.Sc. (specialised in Applied Statistics and Computer Programming). Tony has experience working with researchers in developing customised technological applications for Clinical Decision Support Systems, Data warehousing, Data Integration and IT applications for healthcare decision making processes. Currently, Tony is supervising 4 research masters and 4 PhD level projects in the Medical Informatics research area. Tony holds professional membership with ACM (SIGBioinforamtics), IEEE, IBS, ACS, SSAI and HISA.

Panel New Trends On Telehealth / Telemedicine (II)

- Impacts to the regional development of the on-site teaching with technology in the State University of Amazonas
Aderli Simões (State University of Amazonas, Manaus, Brazil)

- Evaluation of the Telemedicine Programme on Alentejo, Portugal
Tiago Cravo (Imperial College of London, UK)

- Darwin Project: Clinical Simulation
Carles Fabrega (San Joan de Deu Hospital, Barcelona, Spain)

- Telemedicine in the training of the GP in the Community
Ricardo Amaral (Manaus, Brazil)

- Mobile Heath
Andrés Bas (Badajoz, Spain)

Closing Session

Joel Rodrigues - IEEE Healthcom 2013, General Chair, Instituto de Telecomunicações, University of Beira Interior, Portugal
Andrés Bas (Fundación Videomed, Spain, Director)
Cleinaldo Costa - (State University of Amazonas, Brazil, Rector)
José Ricardo (Associação para o Desenvolvimento da Telemedicina, Portugal, Chair)

- Henrique Martins (Chairman of the Board, SPMS; University of Beira Interior, Portugal)

- Paulo Neves (AMA President)

- Joel Rodrigues (General Chair, IT-UBI, Portugal)

The Challenge of Big Data in Health: Meaningful Use of Information for Patient Centered Care

Abstract:

The advancement of technology has allowed the establishment of different forms of data acquisition and today we have an explosion of data. Now, the problem is not to get the data, but transform it into information and knowledge that is particularly useful in decision making. In healthcare is no different, health professionals rely on data and information to make important decisions regarding their patients In the past, it was difficult to obtain reliable information, accurate and in real time, so it was common to make a diagnosis based on intuition than knowledge of facts. Today, with the advancement of technology, especially in healthcare, is possible to achieve a large amount of data of all kinds. So the problem is not how to get more information but learn to use it wisely. It is necessary to store the data and extract from them information and knowledge in order to care the patients and improve their quality of life. On the other hand, as the data are personal it is possible to understand the evolution of the disease in the individual and thus, to establish a personalized care by practicing patient-centered care. So, we can make prevention and health promotion at the individual level, making them aware of their health and improving their quality of life.

Short Bio:

​Marcia Ito is medical doctor, data processing technologist, doctor and master in electrical engineering. Currently, she is a researcher in the Human Systems group at IBM Research Brazil and professor in Faculty of Technology of São Paulo. She is also an Executive Secretary of the Brazilian Health Informatics Society, vice-coordinator of the Committee of Applied Computing in Health at Brazilian Computer Society and she takes part in the ABNT Special Temporary Health Informatics Committee (ABNT/CEET 00:001.78) as an expert in data structure standards in Health Informatics. She has experience in the area of Computer Science and Medical Informatics, with emphasis on Software Engineering, Distributed Artificial Intelligence, Accessibility and e-Health, acting on the following topics: Requirements Engineering, Health Service Design, Multi-agent Systems, Management of Chronic Patients and Education for People with Special Needs.

Disaster Communications after the Accidents of the Fukushima Nuclear Power Plant (Japan)

Abstract:

The author served as vice-Rapporteur for ITU-D SG2 Question 14 (Telemedicine and eHealth) and is also involved in the field of disaster communications and emergency medical care as guest research scientist at the Fukushima Nuclear Accident Independent Investigation Commission established by the National Diet of Japan and reviewer of the Commission's report.
Between the Government of Japan and local governments, there are three independent nationwide urgent communication systems. 1) J-ALERT(caution system for the missile launch, terrorism, natural disaster), 2) LASCAOM (Local government V-SAT network on Ku-band). 3) Municipal Disaster Management Radio Communication Network (via domestic Satellite and VHF radio ). Separately from the network of three above, 4) two-way video conferencing system via Inmarsat satellite is applied between the Ministry of Economy, Trade and Industry, electric power companies, and each local government where nuclear power plant located.
In the accidents of the Fukushima Nuclear Power Plant, the Government gave an evacuation directive for the head of the local governments just after a hydrogen explosion, however the communications didn't reach to the local governments well. Though there is the disaster communications network nominated for four(1)-(4) as above, the evacuation order and the evacuation advisory issued by the Government didn't reach the head of the local government. Why? The head of the local government appealed to inhabitants for criticism to hear the evacuation directive from VHF police radio. As a result of having introduced a principle of the free competition into communications industry, for the past 20 years, in the Government of every country, the wireless network that many companies applied by self-management was replaced by cell-phone system. However, it is helped by this disaster by the VHF police radio which was the only network (independent wireless network in Fukushima after the Great East Japan earthquake).
I have investigated the details in the field of disaster communications after the Fukushima Nuclear Power Plant accidents and report it at the Healthcom 2013 Lisbon.

Short Bio:

He is a Professor of the Department of Emergency Medicine and Critical Care, Tokai University School of Medicine and has his own laboratory for medical communications. He had finished his chief resident course at the 2nd General Surgery of Tokai University Hospital. He received his M.D. degree from Tokai University, Ph.D.(Bio Medical Eng.) in 1988, and Ph.D.(Applied Informatics) in 2009 from University of Hyogo Graduate School. He has studied on telemedicine and eHealth for over 30 years, had conducted the Asia Pacific Medical Network using ETS-V satellite under the umbrella of PARTARS project of the Government of Japan. Recently, he has developed the ICT system to prevent Avian Influenza. He has been a consultant of WHO-WPRO, World Bank, and JAXA, also a Vice-Rapporteur of ITU-D for ehealth.

Moderator: Eric Addeo (DeVry University)

Participants: Miguel Castelo Branco (University of Beira Interior, Portugal; Centro Hospitalar Cova da Beira – University Hospital, Covilhã, Portugal); Cleinaldo Costa (State University of Amazonas, Brazil); Marcial Garcia Rojo (Vice-President of SEIS, Spain); Eric Addeo (DeVry University, NJ, USA); Zhen Fang (State Key Laboratory of Transducer Technology; Institute of Electronics; Chinese Academy of Sciences (IECAS))

 

Abstract:

There is a vision being explored by an unprecedented partnership of industrial research organizations, academia, and government research organizations. This vision incorporates networked home applications, new intelligent transportation applications, and e-health care appliances and communications services in the home aimed at reducing the soaring costs of medical care for a burgeoning ageing population. These three "big bangs" will likely change the way people work, interact with family members, socialize, and derive health care services over the next seven to ten years. This shared vision is driven by an increasingly large population of sophisticated Internet citizens who seek to leverage enhanced, multimodal communication environments to juggle home, work and personal needs, to have high quality and dependable home health care. This talk will explore the promise of emerging eHealth technologies, applications, and services within the landscape of market forces driving eHealth service providers and end-users operating within the boundaries of an uncertain regulatory arena.

eHEALTH in Europe

Abstract:

While health organizations fight to increasingly integrate their health records and use IT for betterment of patient care, countries try to find mechanisms to bridge the gaps between levels of care as well as different systems and practices. eHealth in Europe is considered to such a high degree as to figure in the first directive of the EU on cross-border care to enter into force in October 2013. There is no timelier occasion to discuss some of most meaningful and important programs at EU level than IEEE HEALTHCOM 2013. This Keynote will update information about a number of projects and initiatives at EU level where Portugal is also participating (PARENT project; eHGI - eHealth Government Initiative; epSOS project; and eSENS). Like all other EU member states, Portugal is part of the high-level eHealth Network, which meets biannually to define the eHealth strategy and priorities regarding Cross-border care. Health at patient level is rapidly growing and a number of issues like cross-border telemedicine services as well as patient portals and patient controlled electronic health record as worthy of discussion.

​​
Short Bio:

​Prof. Martins is an Internal Medicine Specialist. He obtained his PhD degree from the Judge Business School, University of Cambridge with a thesis on "The use of Mobile ICT in clinical Settings". He holds a Master in Management from the University of Cambridge and a Masters in HIV/AIDS from the University of Barcelona. He has several publications in the area of Mobile computing in healthcare and many conference presentations/keynotes in the area of eHealth.
He currently works at the Ministry of Health as Adjunct for Health IT to the Health Secretary of State and is President and CEO of the Shared Services of the Portuguese Ministry of Health (SPMS), being responsible for the new Health Information Sharing Platform for Electronic Health Records and for nationwide efforts on complete electronic prescription and Clinical informatics. He is the representative for Portugal at the European eHealth Network as well as the National EpSOS projecto Coordinator (www.epSOS.eu). He additionally works as CMIO - Chief Medical Information Officer at the Hospital Fernando Fonseca, and coordinates the Center for Investigation and Creativity in Informatics (www.ci2.pt), where he supervises projects in robotics, mobile computing and database exploration and intelligent systems. He teaches health management, leadership and medical informatics in Portugal and abroad.

Transparent Robot-Assisted Gait Training in Neurorehabilitation

Abstract:

Today, a wide variety of robotic devices supports gait training for patients with neurological locomotor deficits. However, clinical studies have not confirmed the expected therapeutic benefits of these devices compared to conventional therapy. Reasons could be that current robotic environments often limit active patient participation and change the task to be trained, due to kinematic constraints, excessive assistance, or undesired interaction forces caused by robot dynamics. This talk will present hardware and control concepts that remedy these shortcomings and enable transparent, user-centered gait training. These concepts range from task-specific hardware design over the targeted use of compliance to minimalistic balance assistance. Embodiments and experimental results will be shown for all concepts, for example a robotic platform for overground gait training in rats, which enabled groundbreaking research on recovery after spinal cord injury, as well as a recent extension of the robotic principle to human scale.

Short Bio:

​Heike Vallery graduated in Mechanical Engineering from RWTH Aachen University in 2004, and she received her PhD from Technische Universität München in 2009. As a postdoc at ETH Zürich, she established a research group on leg exoprosthetics. In 2011, she joined Khalifa University in Abu Dhabi as an assistant professor. Currently, she holds an assistant professorship at Delft University of Technology, and she also remains affiliated with ETH Zürich and Khalifa University. Her research interests are in the areas of bipedal locomotion, rehabilitation robotics, and haptic human-robot interaction. She has published more than 30 peer-reviewed publications and filed 4 patents.

Moderator: Masum Z Hasan

Participants: Nazim AGOULMINE (University of Evry, France); Gerard Parr (University of Ulster, UK); Aravind Kailas (UNC Charlotte, USA); Filipa Freitas (Portugal Telecom)

Abstract:

True to human physiology and anatomy the healthcare provider entities or HPE (healthcare IT applications, networks, providers, physicians, departments, such as diagnostics, cardiology, radiology, pharmacy departments to name a few) are disparate and can be widely and geographically distributed. But all these disparate HPEs serve a single other entity, which is the patient. The disparateness of the HPE causes many issues in providing consistent care to a patient. One major issue is difficulty in providing consistent and single electronic medical record (EMR). With the advent of use of personal mobile or IoT (Internet of Things) devices, including small diagnostics devices such as those supporting Continua consortium architecture or ISO/IEEE 11073 series standards, the upkeep of EMR becomes even more challenging. Can Cloud come to the rescue? What are the issues that should be addressed to support true Cloud based secure EMR and healthcare services in general? This panel of industry and academia experts will address these issues.

- Henrique Martins (Chairman of the Board of SPMS, Portugal; University of Beira Interior, Portugal)

- Helena Monteiro (Operation Chair; ISCSP-University of Lisbon, Portugal)

António Murta (President of Pathena Group, Portugal)

Ana Paula Harfouche (IPO, Portugal; ISCSP-University of Lisbon, Portugal)

Francisco Velez Roxo (Hospital Leiria-Pombal, Portugal; Catholic University, Portugal)

Moderador - Adalberto Campos Fernandes (President of SAMS, Portugal; National Public Health School, Portugal)

Henrique Martins (Chairman of the Board of SPMS, Portugal; University of Beira Interior, Portugal)

- Joel Rodrigues (General Chair; Instituto de Telecomunicações, University of Beira Interior, Portugal)​
- Paulo Macedo (Portuguese Health Minister)